Additional Online Resources
Bladder Cancer Advocacy Network (BCAN)
BCAN offers information on bladder cancer, clinical trial listings, an online chat room, and an online newsletter.
Bladder Cancer Webcafe
Offers information on treatment options, survivorship information, research efforts, and resources for patients with bladder cancer.
American Brain Tumor Association (ABTA)
Toll Free: 800.886.2282
ABTA offers brain tumor information, support, a pen pal program, a newsletter, and information about treatment facilities.
The Brain Tumor Foundation (BTF)
BTF offers support groups, medical referrals, peer matching programs, and an annual conference.
The Brain Tumor Society
Toll Free: 800.770.8287
The Brain Tumor Society provides support and education to brain tumor patients and their families. Their network of survivors and their families provides information and support by phone and through e-mail.
National Brain Tumor Foundation (NBTF)
Toll Free: 800.934.2873
NBTF provides information, support, and counseling for brain tumor patients and their families. They offer a newsletter, a patient-to patient e-mail network, and a patient help fund.
Website provides information about all aspects of breast cancer, including prevention, treatment, recovery, and research.
Facing Our Risk of Cancer Empowered (FORCE)
Toll Free: 866.824.7475
FORCE offers women with a family history of breast cancer and those with a BRCA mutation a toll-free helpline, message boards, and genetic testing and cancer risk reduction information.
Living Beyond Breast Cancer (LBBC)
Toll Free: 888.753.5222
LBBC provides resources and support for people affected by breast cancer. They offer teleconferences as well as quarterly educational seminars, and a survivors’ helpline where callers speak to trained volunteers who have also been affected by breast cancer.
Mothers Supporting Daughters with Breast Cancer (MSDBC)
MSDBC provides free support services designed to help mothers who have daughters battling breast cancer. Support is provided in a variety of ways including one on one support by mother volunteers who have had firsthand experienced the trauma and challenges of having a daughter diagnosed with breast cancer, through distribution of a mother's handbook and daughter's companion brochure to provide guidance as to how a mother can be constructively helpful to her daughter during her breast cancer treatment.
Susan G. Komen for the Cure
Toll Free: 800.462.9273
Susan G. Komen for the Cure is the world’s largest and most progressive grassroots network of breast cancer survivors and activists. They offer information on the diagnosis, treatment, risk factors and screening for breast cancer.
Y-Me National Breast Cancer Organization (Y-ME)
Toll Free: 800.221.2141
Y-ME provides information and support to anyone touched by breast cancer. Programs include a 24 hour national hotline staffed by trained peer counselors who are breast cancer survivors; a survivor match program pairing the caller with a peer counselor who had the same diagnosis, is the same age or has experienced similar challenges as the caller; a partner match program that provides support and education for people while they are supporting a wife, partner or other loved one through the disease; teleconferences and publications.
Young Survival Coalition (YSC)
Toll Free: 877.972.1011
YSC is dedicated to the concerns and issues unique to young women with breast cancer. They provide information and advocacy and sponsor a yearly conference.
COLON AND RECTAL CANCER
Colon Cancer Alliance (CCA)
Toll Free: 877.422.2030
CCA provides information, a newsletter and a network for colon and rectal cancer survivors, caregivers, people with a genetic predisposition to the disease, and other individuals touched by colorectal cancer.
Colorectal Cancer Coalition (C3)
C3 provides information about colon cancer prevention, research, clinical trials, treatment, and advocacy.
Colorectal Cancer Network
This network hosts support groups, chat rooms, matching list that connects the newly diagnosed with long term survivors.
EyesOnThePrize.org provides information and functions as an online support group for women with gynecologic cancers, their families and friends, and health care providers.
Facing Our Risk of Cancer (FORCE)
Toll Free: 866.824.7475
FORCE offers women with a family history of ovarian cancer and those with a BRCA mutation a toll-free helpline, message boards, and genetic testing and cancer risk reduction information.
National Cervical Cancer Coalition (NCCC)
Toll Free: 800.685.5531
NCCC provides information about cervical cancer prevention, screening, and treatment. They host phone pals and e-pals support programs, print newsletters, and sponsor conferences.
National Ovarian Cancer Coalition (NOCC)
Toll Free: 888.682.7426
NOCC offers a toll-free telephone service and promotes patient advocacy, support, and education.
Ovarian Cancer National Alliance
The Ovarian Cancer National Alliance distributes educational materials, sponsors an annual conference, and advocates for ovarian canceer research.
Women’s Cancer Network (WCN)
Toll Free: 800.444.4441
The goal of the WCN is to assist women who have developed cancer, as well as their families, to understand more about the disease, learn about treatment options, and gain access to new or experimental therapies.
Kidney Cancer Association (KCA)
Toll Free: 800.850.9132
KCA offers information about kidney cancer treatment, clinical trials, and research as well as a nurse hotline, a free newsletter, and a chat room.
LEUKEMIA, LYMPHOMA, AND MYELOMA
Aplastic Anemia and MDS International Foundation, Inc.
Toll Free: 800.747.2820
The organization’s mission is to support patients, families, and caregivers coping with Aplastic Anemia (AA), Myelodysplastic Syndromes (MDS), Paroxysmal Nocturnal Hemoglobinuria (PNH), and related bone marrow failure diseases by providing educational materials, medical information, and access to peer support via a global network of volunteers.
International Myeloma Foundation (IMF)
Toll Free: 800.452.2873
IMF provides treatment information through a toll-free hotline, packets, seminars, conferences, and a newsletter.
The Leukemia & Lymphoma Society (LLS)
Toll Free: 800.955.4572
The Society's Information Resource Center (IRC), provides the public, health professionals and patients (and their families) living with blood cancers accurate, current, disease-related information. IRC information specialists
are social workers, nurses and health educators. They are available to speak with callers Monday through Friday, 9 a.m. to 6 p.m. EST.
Lymphoma Foundation of America
Toll Free: 800.385.1060
The foundation offers peer counseling, support, referrals for legal advice and second opinions, and treatment information.
Lymphoma Research Foundation (LRF)
Toll Free: 800.500.9976
LRF provides funding for research and offers brochures, a patient-to-patient support program, a newsletter, a patient aid grant program, and clinical trials information.
Multiple Myeloma Research Foundation (MMRF)
MMRF funds research and offers services, information, and advocacy for patients.
Lung Cancer Alliance
Toll Free: 800.298.2436
The Lung Cancer Alliance’s programs include the Lung Cancer Information Line, a toll-free information and referral service for people with lung cancer and their caregivers, the Phone Buddy program, a peer-to-peer support network, Lung Cancer Awareness Month, a national education and advocacy campaign, Spirit & Breath, a quarterly newsletter, and Advocacy Alert, where advocates can receive alerts to participate in or respond to important lung cancer issues.
Lung Cancer Online Foundation (LCOF)
LCOF’s website is a directory of Internet information and lung cancer resources for patients and families.
(A service of CancerCare)
Toll Free: 877.646.5864
This website provides information and support to patients, families, and health professionals dealing with lung cancer. The site also serves as an excellent referral source to CancerCare’s free professional counseling, education and financial assistance programs for people with lung cancer.
National Lung Cancer Partnership
The National Lung Cancer Partnership advocates for lung cancer awareness and research. They provide information about lung cancer for patients and health professional.
This site offers information and resources to help patients and their families understand melanoma and its prevention, the importance of early detection and diagnosis, staging and treatment, symptom management, and where to turn for support.
Melanoma International Foundation
This foundation works to create effective melanoma prevention and treatment programs. They offer information about melanoma and a toll-free patient hotline.
The Melanoma Research Foundation (MRF)
Toll Free: 673.1290
The MRF provides patients with the latest high-quality information from reputable sources and the tools to decipher and organize that information. The MRF believes that proactive patients who educate themselves to take an active role in decisions regarding their therapy can effect their outcome in a positive way. In addition, the MRF provides various forums to allow patients to interact with other patients to provide support and share experiences and resources.
The Skin Cancer Foundation
Toll Free: 800.754.6490
The Foundation provides physician-approved information on the prevention, detection, and treatment of skin cancer. It holds educational programs and raises money to fund skin cancer research.
Mesothelioma Applied Research Foundation (MARF)
The MARF is a collaboration of patients and families, physicians, advocates, and researchers dedicated to eradicating the life-ending and vicious effects of mesothelioma. It promotes research to develop more effective treatments. Through the Patient Advocacy program it offers personalized help to patients and family members, educating them on the disease, helping them to obtain the most up-to-date information on treatment options, and connecting them with other patients and families.
Mesothelioma Research Foundation of America
Toll Free: 800.909.6376
The Mesothelioma Research Foundation of America provides funding for research and offers information about asbestos exposure and the treatment of mesothelioma.
ORAL, HEAD, AND NECK CANCER
International Association of Laryngectomees (IAL)
Toll Free: 866.831.8525
IAL provides resources, referrals, and support to patients who have or will have a laryngectomy (removal of the larynx).
Oral Cancer Foundation
The Oral Cancer Foundation provides information about oral cancer risk factors, treatment, research, and current news. They also host a patient/survivor forum.
Support for People with Oral and Head and Neck Cancer (SPOHNC)
Toll Free: 800.377.0928
SPOHNC provides current information for oral and head and neck cancer patients who are trying to gain a better understanding of their illness and their lives through their newsletter, News From SPOHNC, that is provided to patients, their families and friends, and members of the healthcare community. SPOHNC helps to increase awareness of the many ongoing issues related to head and neck cancer and to address the broad medical, emotional and humanistic needs of patients empowering each to take an active role in his or her recovery.
The Yul Brynner Head and Neck Foundation
The foundation hosts an online forum, organizes support groups, and sponsors Head and Neck Cancer Awareness Week.
WebWhisperes provides practical and educational information and support by way of the Internet to laryngectomees and to all persons diagnosed with or treated for cancer that affects the larynx or those who have suffered damage to the vocal cords.
Pancreatic Cancer Action Network (PanCAN)
Toll Free: 877.272.6226
PanCAN provides pancreatic cancer information, brochures, a toll-free phone hotline, patient-to-patient and caregiver support networks, and regional advocacy groups called Team Hope.
The pancreatica.org website answers frequently asked questions about pancreatic cancer, contains a clinical trials database, and provides users with research and new articles. In addition, it offers users an opportunity to speak with an experienced counselor about how pancreatic cancer is affecting their life.
National Prostate Cancer Coalition (NPCC)
Expert information about risk assessment and detection of Prostate Cancer
Prostate Cancer Foundation
Toll Free: 800.757.2873
The Prostate Cancer Foundation funds research and provides information, educational materials, and a newsletter. They also sponsor national advocacy and fundraising events.
US TOO! International
Toll Free: 800.808.7866
This network of support groups for men with prostate cancer and their families offers a toll-free support line, newsletters, web-based communities, and information about treatment.
The Sarcoma Alliance provides guidance, education, and support for individuals with sarcoma and their loved ones.
Sarcoma Foundation of America
The foundation raises awareness and funds for research. They provide information about sarcoma, host online forums, and sponsor state chapters.
The Liddy Shriver Sarcoma Initiative
The Liddy Shriver Sarcoma Initiative raises research funds and provides information about various types of sarcoma.
Testicular Cancer Resource Center
The Testicular Cancer Resource Center provides information about all aspects of testicular cancer, including treatment, side effects, fertility, and survivorship. This site also hosts an e-mail support group.
Thyroid Cancer Survivors’ Association, Inc. (ThyCa)
Toll Free: 877.588.7904
ThyCa provides information about thyroid cancer as well as online support groups, a person-to-person network, conferences and workshops for patients, and a newsletter.